Category Archives: Community & Events

The Evolution of Medicine Summit

Community & Events, Resources & Research

The Evolution of Medicine Summit Do you know what medicine will look like in 5-10 years and how it will affect you?

You should!

40 trusted world leaders in health!
Free online event!

 

Medicine is evolving to solve the modern epidemics of chronic disease, such as Type 2 diabetes, heart disease and a range of autoimmune diseases. Our summit intends to not only shine a light on the work of those visionaries and innovators leading this evolution, but also set a unique vision for a more evolved healthcare system. This vision is patient-centric, empowered, proactive and participatory.

We’ve created separate tracks for health consumers and health professionals for the Evolution of Medicine Summit. However, please feel free to enjoy all of the information no matter your profession or state of health!

Register Here

 

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Empowering Self Management of Pain, Part IV: Q&A on Part III, Poll, and Discussion

Community & Events, , ,

workshop written on chalkboardWednesday, May 22, 2013, 11:30am – 12:30pm
This workshop is a webinar and occurs online.

PART IV: In this, our last session, we will spend 25 mins on a Q&A regarding Part III and then we’ll end the webinar series with a poll and discussion. We want to hear from you whether you feel that the workshop has helped you better understand your pain? Was it practical information that was helpful to you in controlling your pain and returning you to function? Will the sessions change how you approach activity? We want to hear what in particular you got out of the sessions and how you feel we can improve our programming. Time permitting, Neil will also be taking your questions on pain self-management.

with Neil Pearson, Life Is Now
Find out more and register at PainBC

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National Fibromyalgia & Chronic Pain Day, May 12th

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National Fibromyalgia & Chronic Pain Association (NFMCPA) Launches National “CARE & Make Fibromyalgia Visible” Campaign, May 2013

The National Fibromyalgia & Chronic Pain Association (NFMCPA), a global community supporting individuals living with fibromyalgia (FM) and other chronic pain illnesses, announces the kick-off of its national awareness campaign “CARE & Make Fibromyalgia Visible,” Fibromyalgia Awareness Day, Sunday, May 12, 2013 — and throughout the month of May. NFMCPA calls upon individuals living with FM and their friends, family and caregivers to contribute, advocate, participate in research, as well as to educate others about fibromyalgia, a common illness involving long-term, body-wide pain, fatigue, sleep disturbances, memory problems and impaired functionality.

“We have had an overwhelmingly positive response to this campaign — with thousands of people participating in events across the country — validating our conviction that chronic pain, including fibromyalgia, is a public health crisis,” says Jan Favero Chambers, president and founder, NFMCPA. “It’s critical that those living with chronic pain raise their collective voices in order to turn the tide against the often devastating impact of chronic pain on individuals, families, communities and the nation.”

While there is no cure for fibromyalgia (FM), interdisciplinary team approaches that include medications, alternative therapies and lifestyle changes can help manage symptoms. Women are much more likely than men to develop FM, according to the Mayo Clinic. Appropriately, Fibromyalgia Awareness Day takes place over Mother’s Day weekend and includes:

  • Thunderclap, Midnight, May 11, 2013: individuals worldwide will concurrently post the “CARE & Make Fibromyalgia Visible” logo via Facebook and Twitter.
  • The Walk to CURE FM: numerous walks throughout the country.
  • Fibromyalgia Proclamations & Declarations: outreach program encourages officials to declare May 12 Fibromyalgia Awareness Day in their jurisdiction. To address controversies, prejudices and the life-altering effect of fibromyalgia, NFMCPA offers:
  • FM patient education, including symptom management
  • Coordinated advocacy for research for new treatments

Continue reading on online.wsj.com

Jacqueline Goguen‘s insight:

Fibromyalgia Awareness Day, Sunday, May 12, 2013 and throughout the month of May http://www.fmcpaware.org/

Blessings,
Jacqui

See on online.wsj.com

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Women in Pain: Tell Us Your Stories!

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When we first conceived the idea of launching a news website devoted to chronic pain, we had a pretty clear goal — to be a clearinghouse of information focused on pain management and patient empowerment.

At National Pain Report, we were counseled by physicians and others who work with pain patients that there is one large group to which we need to pay special attention: women.

And we have been doing just that.

In addition to talking with experts about this topic, we’d like to go one better. We’d like to hear and publish more first person stories from women in chronic pain.

Do you have a story to tell?

Before you ask “Who would listen to me?” consider this from one of our experts who studies the issue:

“Women suffer from chronic pain more than men, it strikes women more severely, the episodes of pain are longer and of greater frequency,” said Beth Darnall, PhD,  Associate Professor of Pain Medicine at Stanford University School of Medicine…

Jacqueline Goguen‘s insight:

Humans have been sharing stories far longer than we’ve been writing, originally told using gestures, expressions and pictures.  Storytelling crosses cultural boundaries and is how we have shared our experiences, passed down history and is used to communicate, entertain, teach, inspire and connect with other human beings.

Maya Angelou says, “There is no agony like bearing an untold story inside you.” Once you tell one story or hear a story, you are hungry for more and you never weary of this experience. Stories take us to the center of oneself and to the unexplored area of our life that can inspire transformation in our self and in others…from ALPFA Institute

As women we have a special role in storytelling, we bring  compassion, strength and depth of heart to the stories we share. So, you’ve been invited to hop over to National Pain Report.com and share your story. I also invite you to share some of your story below in the comments. I’ll start with some of mine.

Blessings,
Jacqui

See on americannewsreport.com

 

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Ah, What’s Up (Wiki) Doc?

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Jacqueline Goguen‘s insight:

A great medical reference and resource in the spirit of Wiki started by @CMichaelGibson, MS, MD, because he believes “The tribe is smarter than any one”. Check out www.WikiDoc.org! Lots of information for patients and professionals.

Are there other great resources you’ve come across that have helped you better understand your chronic pain or manage it, whether disease related or not?

Blessings,
Jacqui

See on wikidoc.org

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